tag:blogger.com,1999:blog-7192718134910479930.post902972666862363664..comments2024-03-28T23:56:24.570+01:00Comments on Interim arrangements: Sabinehttp://www.blogger.com/profile/09015827501648296977noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7192718134910479930.post-27298048275314105642015-12-10T23:47:16.693+01:002015-12-10T23:47:16.693+01:00sending love, dear Sabine.sending love, dear Sabine.37paddingtonhttps://www.blogger.com/profile/12400464105403622384noreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-2182726664444141552015-12-10T13:34:47.668+01:002015-12-10T13:34:47.668+01:00hugs, just hugshugs, just hugsFire Birdhttps://www.blogger.com/profile/13518190677399410354noreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-37537242616793236852015-12-08T15:35:33.015+01:002015-12-08T15:35:33.015+01:00My very best wishes to you for this treatment. My very best wishes to you for this treatment. Colettehttps://www.blogger.com/profile/13929646037752189809noreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-66485430198249402812015-12-08T11:35:14.848+01:002015-12-08T11:35:14.848+01:00Thank you! The idea of a personal assistant, someo...Thank you! The idea of a personal assistant, someone who will wave a magic wand everytime I need to deal with the logistics of my chronic illness business, is only a dream. No such thing exists in our socialist health system. Instead I have to fill out forms and get doctor's certificates to prove that I am not a fraud but indeed a sufficiently needy sick person. <br />But I'll keep on suggesting it every time I'm on the phone to them. They still think I am joking.<br /><br />Robin Andrea: I have been reading about your mum all along. My treatment schedule is two sessions 14 days apart every 6 months for the next eternity. Hopes are that b-cells will be sufficiently inactivated to stop them from being the autoimmune bastards they are at the moment. I think my dosage will be somewhat lower than with your mother's diagnosis or at least will eventually be lowered. Frankly, I have no idea.Sabinehttps://www.blogger.com/profile/09015827501648296977noreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-34659310786678236382015-12-08T03:39:32.312+01:002015-12-08T03:39:32.312+01:00I wish that for you, too. Healthy gums!!!I wish that for you, too. Healthy gums!!!amhttps://www.blogger.com/profile/09212213177713917828noreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-90165953975512855482015-12-08T01:00:53.743+01:002015-12-08T01:00:53.743+01:00I hope you get your personal assistant so that get...I hope you get your personal assistant so that getting to your treatment and back is absolutely handled, and not something you have to think about on top of everything else. My mom has just had her fifth monoclonal antibody treatment for her recent diagnosis of Follicular Lymphoma. She has handled it very well. My siblings and I have been taking turns sitting with her through the 4-6 hour infusion. She has one more in January, and then a follow-up PETscan. The CT scan in October looked very promising, so we are hopeful. I wish the same good news for you. Take care, stay tough, and don't put up with incompetence, even when it's polite. Thinking of you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-85276831797580232542015-12-07T22:32:26.521+01:002015-12-07T22:32:26.521+01:00Go after them, woman! But how debilitating it is t...Go after them, woman! But how debilitating it is to deal with these idiots and especially when you're ill and not at your best. <br />What a world. What a world. <br />May Plan D work miracles. Ms. Moonhttps://www.blogger.com/profile/09776404747858099919noreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-73935195788205611092015-12-07T20:43:47.651+01:002015-12-07T20:43:47.651+01:00Great song. And I don't think you're askin...Great song. And I don't think you're asking for too much. I hope your (outsized) dreams come true and that the insurance company -- well -- goes to hell.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-7192718134910479930.post-2656067452281121542015-12-07T20:24:03.749+01:002015-12-07T20:24:03.749+01:00It's not childish to be angry when someone on ...It's not childish to be angry when someone on the end of the phone doesn't listen - and then insists you want something you haven't asked for. It sounds very grown up and healthy to me!JOhttps://www.blogger.com/profile/03127111575563904349noreply@blogger.com