Pushing along. I am climbing mountains. It feels like it. Every day. So now they tell me that cutting down the cortisone after almost ten years does produce symptoms such as all the shit that is going on. Now! Seriously. There is me learning about the cortisol metabolism and how cortisone fits in and the adrenal glands and, wait for it, adrenal fatigue. Brilliant, isn't it, that there's a name for almost everything which feels great for a while until you realise it doesn't matter and certainly is of no help. None whatsoever.
Anyway, it could last for about 12 months, they said. And we all know that 12 months is one whole year. But, they said, it comes and goes. Ah sure. Doesn't everything. Come and go.
Cutting down the cortisone has now become my mission in life. I have a chart drawn. I am keeping a cortisone tapering diary and I am the best pupil in the school of cortisone tapering the young and well-dressed immunologist has ever had. He in his pretty argyle socks.
And, in the words of a learned and sceptical friend, if it all goes sideways, everybody'll know why and let them pick up the pieces then. Well-dressed or not.
There are bigger things to concentrate on. It rained! One whole day and most of the night. That was weird and wonderful. The word lush comes back into use. But with caution.
The larger family is assembling in my father's garden on the weekend. Instead of coming out in a rash, as some would at the the thought of 17 people talking at the top of their voices pretending to be close, I woke up with vertigo in the early hours and have been spending a considerable amount of time today dealing with seasickness and the various ways this causes voiding of half digested food stuff. Somehow I will get to sit in my father's garden eventually, R can do the driving, and once we arrive I could hide somewhere in a tree. Or under one.
After that, we are going to the sea side. At least it's booked. That's the plan. Let's not think of what could go wrong. In other words, I am on holiday. My boss suggested I take a rest. Very funny.
In an effort to not lose sight of the bigger picture, to avoid getting lost in too much self pity, and to keep the mind occupied during sleepless hours, I have listened to episodes from the Awake at Night podcast (https://www.unhcr.org/awakeatnight/) where "listeners
will join UNHCR’s communications chief, Melissa Fleming, in personal
conversations with an array of humanitarian workers, and learn what
drives them to risk their own lives protecting and assisting people
displaced by war". It's strangely uplifting, reminding me of the fact that there are good people everywhere.
I leave you with another sign of hope and happiness.
Trevor Mallard, New Zealand's House of Representatives speaker, bottle feeding Mr Tāmati Coffey's baby while he presided over a debate. Mr Coffey is an elected politician and is married to Mr Tim Smith and this is their son Tūtānekai Smith-Coffey.